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Post by Legend Lover on Oct 15, 2018 8:02:51 GMT -5
Many of you helped to choose a soundtrack for the video I was to make for the charity ball we're hosting on Saturday night...and I had chosen one of your suggestions until, last week, when I heard another song that ticked all the boxes for me.
So, after a morning of editing and tears, I've finished the video for our charity ball. Thanks for all your suggestions - they helped to shape the direction of the video.
If anyone is interested, this is the video that I made for the charity ball on Saturday night.
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Post by oldcajun123 on Oct 15, 2018 8:12:27 GMT -5
I have no words!
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Post by just ol ed on Oct 15, 2018 8:21:43 GMT -5
Very touching & emotional, thanx for the insite & hope that she can improve. Please let us caring folks know any news.
Ed Duncan, Batavia, NY
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Post by Legend Lover on Oct 15, 2018 8:26:41 GMT -5
Thanks guys... Even for taking the time to watch the video.
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Post by antb on Oct 15, 2018 8:36:14 GMT -5
Oh man, LL! Stay strong!
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Post by Deleted on Oct 15, 2018 8:39:30 GMT -5
May the Patron Saints bless you and your family.
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Post by Deleted on Oct 15, 2018 9:03:17 GMT -5
Paddy, you have two beautiful daughters, stay strong for both. You did a wonderful job putting your video together, brought tears to my eyes while getting my treatment. A nurse noticed and asked if I was okay. She wanted to watch the video as well, ended up we both cried together.
All the best to you and your family in these trying times
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Post by Legend Lover on Oct 15, 2018 9:15:24 GMT -5
Paddy, you have two beautiful daughters, stay strong for both. You did a wonderful job putting your video together, brought tears to my eyes while getting my treatment. A nurse noticed and asked if I was okay. She wanted to watch the video as well, ended up we both cried together. All the best to you and your family in these trying times aw brother. Thanks for that.
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Post by papipeguy on Oct 15, 2018 9:16:04 GMT -5
That is very powerful. I am in tears.
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Post by Cramptholomew on Oct 15, 2018 10:16:31 GMT -5
Legend Lover Geez, buddy. I can't even imagine. I'm literally in tears. How the heck do I donate? Do you have a GoFundMe or something setup? I want to help.
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Post by Legend Lover on Oct 15, 2018 10:38:55 GMT -5
Geez, buddy. I can't even imagine. I'm literally in tears. How the heck do I donate? Do you have a GoFundMe or something setup? I want to help. OK, I don't know what to say. I wanted to show this because you've been part of the process, in a sense (and I'm sharing the rest of my life with you anyway. Lol). I'm not expecting donations from you at all. However, I also don't want to stop you contributing if you feel led to, so if you go to www.justgiving.com/naomiaa you can find more information about the condition and donate.
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Post by Cramptholomew on Oct 15, 2018 10:48:29 GMT -5
Geez, buddy. I can't even imagine. I'm literally in tears. How the heck do I donate? Do you have a GoFundMe or something setup? I want to help. OK, I don't know what to say. I wanted to show this because you've been part of the process, in a sense (and I'm sharing the rest of my life with you anyway. Lol). I'm not expecting donations from you at all. However, I also don't want to stop you contributing if you feel led to, so if you go to www.justgiving.com/naomiaa you can find more information about the condition and donate. You might not expect it, but you've got my support. You are one of the most large-hearted, gentle spirited, encouraging people I've met in a long time, and you and your family deserve any monetary support I can muster. If I can spend money on stuff that goes up in smoke (literally), then I can also afford to help a brother's child. May God bless you and your family, my friend.
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Post by Legend Lover on Oct 15, 2018 10:49:56 GMT -5
OK, I don't know what to say. I wanted to show this because you've been part of the process, in a sense (and I'm sharing the rest of my life with you anyway. Lol). I'm not expecting donations from you at all. However, I also don't want to stop you contributing if you feel led to, so if you go to www.justgiving.com/naomiaa you can find more information about the condition and donate. You might not expect it, but you've got my support. You are one of the most large-hearted, gentle spirited, encouraging people I've met in a long time, and you and your family deserve any monetary support I can muster. If I can spend money on stuff that goes up in smoke (literally), then I can also afford to help a brother's child. May God bless you and your family, my friend. I'm blown away. Thank you so much.
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Post by Deleted on Oct 15, 2018 11:10:26 GMT -5
Wow, you picked the most perfect song. Incredibly touching and moving. You are an amazing person in more ways than I realized off the get-go.
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Post by Legend Lover on Oct 15, 2018 11:24:36 GMT -5
Wow, you picked the most perfect song. Incredibly touching and moving. You are an amazing person in more ways than I realized off the get-go. yea, I was listening to a Coldplay playlist last week, and the song came up and I thought, 'THAT'S IT!!' I also had to humble myself and acknowledge to my wife that she was right... The words do make a difference.
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Post by Deleted on Oct 15, 2018 11:26:19 GMT -5
Wow, you picked the most perfect song. Incredibly touching and moving. You are an amazing person in more ways than I realized off the get-go. yea, I was listening to a Coldplay playlist last week, and the song came up and I thought, 'THAT'S IT!!' I also had to humble myself and acknowledge to my wife that she was right... The words do make a difference. That's how I get in trouble with Rock & Roll. I do listen to the words
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Post by scrooge on Oct 15, 2018 12:02:34 GMT -5
Paddy: Nothing I can say will say what I feel.
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Post by Cramptholomew on Oct 15, 2018 12:05:04 GMT -5
Paddy: Nothing I can say will say what I feel. That is God's truth.
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Post by Legend Lover on Oct 15, 2018 12:05:43 GMT -5
Paddy: Nothing I can say will say what I feel. You don't have to say anything. I hope it has the same impact on Saturday night as it has had here.
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Post by McWiggins on Oct 15, 2018 12:42:40 GMT -5
The only two words I've got is "absolutely beautiful" and they do nothing to express my feelings.
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Post by Deleted on Oct 15, 2018 12:53:24 GMT -5
Paddy, I hope this doesn't offend you or anyone else.
May the Christ, St Patrick and St Brigid embrace and heal her.
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Post by Legend Lover on Oct 15, 2018 13:03:04 GMT -5
Paddy, I hope this doesn't offend you or anyone else. May the Christ, St Patrick and St Brigid embrace and heal her. Thank you, John. No offence taken at all.
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Post by trailboss on Oct 15, 2018 16:39:51 GMT -5
What a beautiful young lady, some of the pictures show that she has a lot of spunk.... you did a great job in putting this together, it really communicates the need.
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Post by Legend Lover on Oct 15, 2018 16:43:22 GMT -5
What a beautiful young lady, some of the pictures show that she has a lot of spunk.... you did a great job in putting this together, it really communicates the need. Thank you, brother. That means a lot.
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Post by peterd-Buffalo Spirit on Oct 16, 2018 6:09:08 GMT -5
… first rate LL... may your family and daughter be strong...
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Post by Legend Lover on Oct 16, 2018 6:26:39 GMT -5
Much appreciated, Peter.
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Post by Screaming Jazz on Oct 16, 2018 20:12:53 GMT -5
Very great video. I have tears welling in my eyes. As someone with disabled family, I know your pain. I'm sorry for her condition. May everything work out for you.
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Post by Deleted on Oct 16, 2018 22:41:19 GMT -5
Very great video. I have tears welling in my eyes. As someone with disabled family, I know your pain. I'm sorry for her condition. May everything work out for you. Not that it's about the song, but it's one I'd never heard before and I think the whole thing was beautifully done. I'm glad for the awareness, too. I had not heard of the condition before.
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Post by Legend Lover on Oct 17, 2018 3:17:45 GMT -5
Cheers guys...
And regarding the song, @cosmicbobo - when I heard the song it was like an epiphany. I told Kate to look it up and she said, 'that's the one'.
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Post by Deleted on Oct 17, 2018 4:35:38 GMT -5
I too have not heard of this condition, it’s extremely rare. Hopefully with more research one day soon and proper treatment your daughter can live a much better life with much less pain. God Bless you and your family.
All the best Saturday at your charity ball🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹🌹
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