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Post by Dramatwist on Mar 5, 2019 13:20:23 GMT -5
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Post by Dramatwist on Mar 5, 2019 14:05:21 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards on Netflix...
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Post by crapgame on Mar 5, 2019 14:06:31 GMT -5
I live with that every day, mine is from a back surgery where there is scar tissue rubbing the nerve root. It is GHASTLY stuff..
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Post by crapgame on Mar 5, 2019 14:09:31 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards... Funny you mentioned that, I had to have Ulnar Nerve Decompression surgery on my right arm, I had the numbness and fire that started in my wrist and made my ring and pinky fingers feel like they were on fire |
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Post by Dramatwist on Mar 5, 2019 14:10:15 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards... Funny you mentioned that, I had to have Ulnar Nerve Decompression surgery on my right arm, I had the numbness and fire that started in my wrist and made my ring and pinky fingers feel like they were on fire ...yeah, man, it really sucks... |
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Post by sperrytops on Mar 5, 2019 14:13:03 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards on Netflix... Martin, take care of yourself and keep playing. |
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Post by Dramatwist on Mar 5, 2019 14:18:22 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards on Netflix... Martin, take care of yourself and keep playing. ...I will, Perry. Thanks, man. |
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Post by Ronv69 on Mar 5, 2019 14:32:49 GMT -5
...Valerie was doing some internet research on the condition this morning, and apparently, if I keep moving my fingers (typing, playing guitar) it's good and will help... so, I'm playing some blues today, and doing the best I can... watching "Under the Influence" a documentary about Keith Richards... Funny you mentioned that, I had to have Ulnar Nerve Decompression surgery on my right arm, I had the numbness and fire that started in my wrist and made my ring and pinky fingers feel like they were on fire I had the same thing, but numbness instead of pain. I had surgery to relocate to ulnar nerve, but my pinky and half my ring finger are still numb years later. But it hasn't gotten any worse. Maybe just a little better. In my nerve conduction test yesterday the tech kept going back to my left arm and retesting it and my right arm. I had to explain to him why he was getting such bad readings. |
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Post by exbenedict on Mar 5, 2019 17:33:50 GMT -5
I have that as well, but it's not an issue yet. It's due to Type 2 Diabetes which almost every guy in my family has. Comes and goes. So far it has never progressed past the point of tingly feet but if it ever does....c'est la vie...
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Post by Deleted on Mar 5, 2019 19:53:18 GMT -5
I have degen in S1/L5 . . . found out early last year when I tried to lose weight by walking at least 8000-10000 steps a day. Next thing I know I had no feeling below my left knee. I don't lift anything heavy or I'm in trouble for a few days. Surgery wasn't recommended as the doc said only a 33% chance it would help and 33% that it would make it worse. Pretty sure this is related to a ruptured disk I got in 2002. Last year I was on gabapentin and meloxicam. This year I'm maintaining on just meloxicam. Hoping one day medical can catch up and improve my odds.
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Post by Deleted on Mar 5, 2019 20:33:13 GMT -5
I have Hereditary and Idiopathic Polyneuropathy caused from getting attacked by fire ants which caused my immune system to attack and destroy 95% of the nerves in my arms and legs. When my body was destroying the nerves it felt like I had a tribe of Pigmys with hypodermic needles stabbing me repeatedly. I was taking 10 of the 300mg Gabapentin pills daily, which didn't relieve the pain, so I went to cannibus which took all the pain away. Pharmaceuticals are killing many people year after year, no one has any idea what is in them, we just blindly, and mindlessly eat them like M&M's as they make billions of dollars of corporate profits.
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Post by crapgame on Mar 5, 2019 21:22:12 GMT -5
Funny you mentioned that, I had to have Ulnar Nerve Decompression surgery on my right arm, I had the numbness and fire that started in my wrist and made my ring and pinky fingers feel like they were on fire I had the same thing, but numbness instead of pain. I had surgery to relocate to ulnar nerve, but my pinky and half my ring finger are still numb years later. But it hasn't gotten any worse. Maybe just a little better. In my nerve conduction test yesterday the tech kept going back to my left arm and retesting it and my right arm. I had to explain to him why he was getting such bad readings. My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. |
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Post by crapgame on Mar 5, 2019 21:36:56 GMT -5
I have degen in S1/L5 . . . found out early last year when I tried to lose weight by walking at least 8000-10000 steps a day. Next thing I know I had no feeling below my left knee. I don't lift anything heavy or I'm in trouble for a few days. Surgery wasn't recommended as the doc said only a 33% chance it would help and 33% that it would make it worse. Pretty sure this is related to a ruptured disk I got in 2002. Last year I was on gabapentin and meloxicam. This year I'm maintaining on just meloxicam. Hoping one day medical can catch up and improve my odds. That is where my problems all started.. I could tell a story of woe and great despair but that would take a few days. |
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Post by Dramatwist on Mar 5, 2019 21:42:10 GMT -5
I have Hereditary and Idiopathic Polyneuropathy caused from getting attacked by fire ants which caused my immune system to attack and destroy 95% of the nerves in my arms and legs. When my body was destroying the nerves it felt like I had a tribe of Pigmys with hypodermic needles stabbing me repeatedly. I was taking 10 of the 300mg Gabapentin pills daily, which didn't relieve the pain, so I went to cannibus which took all the pain away. Pharmaceuticals are killing many people year after year, no one has any idea what is in them, we just blindly, and mindlessly eat them like M&M's as they make billions of dollars of corporate profits. I agree, Marty. |
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Post by Dramatwist on Mar 5, 2019 21:44:11 GMT -5
I had the same thing, but numbness instead of pain. I had surgery to relocate to ulnar nerve, but my pinky and half my ring finger are still numb years later. But it hasn't gotten any worse. Maybe just a little better. In my nerve conduction test yesterday the tech kept going back to my left arm and retesting it and my right arm. I had to explain to him why he was getting such bad readings. My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. I've been told by the Neurologist and my general MD that there is basically no chance in hell that it's going to get better. |
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balticbriar
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Post by balticbriar on Mar 5, 2019 22:44:00 GMT -5
I'm sorry for both you and Eric Clapton; not a great thing to have in common. But it does sound like that you have great support and good mindset to help mitigate this disease as much as is possible. I also have a slew of health issues so I'm well aware of how important support and the right mindset are. Hang in there Martin and keep playing. |
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Post by Dramatwist on Mar 5, 2019 22:50:33 GMT -5
I'm sorry for both you and Eric Clapton; not a great thing to have in common. But it does sound like that you have great support and good mindset to help mitigate this disease as much as is possible. I also have a slew of health issues so I'm well aware of how important support and the right mindset are. Hang in there Martin and keep playing. I thank you, my friend, and I will keep doing what I do as long as I can. I am not afraid of dying, but I hope I don't do it with a lot of pain. My PN and ALS is, so far, nothing more than being unable to feel my legs from the knees down, and the tremors I get from time to time in my hands. I am aware that it's never going to get better, but I truly enjoy every day that , when I wake up, my hands work well and I can walk without the cane. |
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Post by Ronv69 on Mar 5, 2019 23:26:58 GMT -5
I had the same thing, but numbness instead of pain. I had surgery to relocate to ulnar nerve, but my pinky and half my ring finger are still numb years later. But it hasn't gotten any worse. Maybe just a little better. In my nerve conduction test yesterday the tech kept going back to my left arm and retesting it and my right arm. I had to explain to him why he was getting such bad readings. My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. My doctor said the same thing, but my strength is at least as good as the "good" hand. I think that the numbness is about 70% as bad as it was. When my wife sticks my finger once a month to make sure my sugar is still OK it's starting to hurt. |
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Post by Ronv69 on Mar 5, 2019 23:29:05 GMT -5
My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. I've been told by the Neurologist and my general MD that there is basically no chance in hell that it's going to get better. Well, yeah. What you have is completely different than a compressed ulnar nerve. |
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Post by Dramatwist on Mar 5, 2019 23:30:20 GMT -5
My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. My doctor said the same thing, but my strength is at least as good as the "good" hand. I think that the numbness is about 70% as bad as it was. When my wife sticks my finger once a month to make sure my sugar is still OK it's starting to hurt. Well, we all get what we get, for one reason or another. I believe that our attitude towards the s*** that life throws our way defines us. I want my children to know that I went out laughing, not being bitter. |
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Post by Ronv69 on Mar 5, 2019 23:36:57 GMT -5
My doctor said the same thing, but my strength is at least as good as the "good" hand. I think that the numbness is about 70% as bad as it was. When my wife sticks my finger once a month to make sure my sugar is still OK it's starting to hurt. Well, we all get what we get, for one reason or another. I believe that our attitude towards the s*** that life throws our way defines us. I want my children to know that I went out laughing, not being bitter. Hey, that's just my arm. My burning feet may turn out to be something horribly worse. Well, probably not worse than ALS. You win. But I still might die before you, especially if I get the motorcycle running. Gotta look at the bright side. |
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Post by Dramatwist on Mar 5, 2019 23:52:10 GMT -5
Well, we all get what we get, for one reason or another. I believe that our attitude towards the s*** that life throws our way defines us. I want my children to know that I went out laughing, not being bitter. Hey, that's just my arm. My burning feet may turn out to be something horribly worse. Well, probably not worse than ALS. You win. But I still might die before you, especially if I get the motorcycle running. Gotta look at the bright side. ...lol... well, we all have to die sooner or later... |
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balticbriar
Junior Member
“It is quite a three pipe problem, and I beg that you won't speak to me for fifty minutes.” - S.H.
Posts: 241
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Favorite Tobacco: John Cotton's Number 1, Solani 633, Samuel Gawith Squadron Leader, Samuel Gawith St. James Flake, Mac Baren HH Latakia Flake, Iwan Ries Gourmet English, Escudo, GL Pease Gaslight
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Post by balticbriar on Mar 5, 2019 23:54:42 GMT -5
I thank you, my friend, and I will keep doing what I do as long as I can. I am not afraid of dying, but I hope I don't do it with a lot of pain. My PN and ALS is, so far, nothing more than being unable to feel my legs from the knees down, and the tremors I get from time to time in my hands. I am aware that it's never going to get better, but I truly enjoy every day that , when I wake up, my hands work well and I can walk without the cane. Yes, I've had a couple surgeries on my left ankle (tore out my angle in a work related injury), my left knee (cracked my knee cap in three places), my low back (first back surgery was an emergency procedure to prevent paralysis-second, on 3 levels, to repair re-injury from an accident). This also caused nerve damage down my left leg, and also nephropathy into my legs. I've had a joint replaced in my right wrist. I've survived a battle with, and surgery for, Prostate Cancer. I've had my right hip replaced. And I've been diagnosed with Pernicious Anemia (after many monthly B12 shots-which I will continue for life-I am feeling better). And a few more things as well. Through all of this, one thing did become very clear to me. It is important to find a way to enjoy wherever I am, and to do what I can to help myself to keep on enjoying what I can. Worrying about what might happen in the future only robs me of the joy that is available to me now, and 99% of the time, that which we worry about, does not happen. And in those cases where it does, simply worrying about it did not prevent it, but it did rob me of the available joy I did have. I don't see this as being a Pollyanna, but as supremely practical; focusing on that which I do have control of. So my friend, hang in there. Enjoy all that there is to enjoy. Focus on what you still have. And know that you are strong enough to deal with whatever comes your way; even if you currently may not be feeling that way.
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Post by Deleted on Mar 6, 2019 0:27:05 GMT -5
Been dealing with numb hands for awhile as well as burning feet. Wearing sheepskin lined moccasins really helps with feet I don't get the same relief from fake lined ones. I tried a bunch of scripts some more than once on a new one now Sinemet works well for claw hand syndrome and seems to help with balance issues. I also have the shakes from time to time. I try not complain too much it is what is and any day that I don't have to watch my feet while walking is pretty good in my book.
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Post by PhantomWolf on Mar 6, 2019 0:50:08 GMT -5
Feels odd giving these posts thumbs up, but my heart goes out to you guys. I think I mentioned my issues before. A serious and prolonged stenosis almost left me in a chair for life. My legs came back, but I can't really feel them. Occasionally I get those 'electric pygmies' though. It is almost like TV static in my skin. Like it's asleep, but more acute and painful. I often wonder if I have something going on down there that I'm unaware of due to nerve loss. Most of the time, my legs and buttocks just feel like I'm sitting in cool, wet bluejeans. haha If that's as bad as it gets, I consider myself blessed. Bummer about Clapton. Not to sound selfish, but he was on my bucket list.
Also, I always have spasms in my legs. Looks like there are pygmies having a party under the skin. Anyone else get that?
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Post by Dramatwist on Mar 6, 2019 1:34:34 GMT -5
Been dealing with numb hands for awhile as well as burning feet. Wearing sheepskin lined moccasins really helps with feet I don't get the same relief from fake lined ones. I tried a bunch of scripts some more than once on a new one now Sinemet works well for claw hand syndrome and seems to help with balance issues. I also have the shakes from time to time. I try not complain too much it is what is and any day that I don't have to watch my feet while walking is pretty good in my book. ...I'm finding the sheepskin-lined moccasins good as well... |
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Post by Deleted on Mar 6, 2019 9:05:32 GMT -5
I suffer from small fiber poly peripheral neuropathy, destroys organs over time. So far destroyed my bladder and one kidney. Now dealing with issues on kidney number 2. I’m not a candidate for dialysis, that’s my choice. Can be extremely painful at times. An extremely debilitating disease!
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Post by Deleted on Mar 6, 2019 10:06:47 GMT -5
Hard to believe that there is as many of us active members who have neuropathy.
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Post by pepesdad1 on Mar 6, 2019 10:35:26 GMT -5
I think that as medicine has progressed...we've discovered and named things that people used to just ascribe to "getting older"...my neuropathy stems from spinal stenosis...had the operation and got rid of much of the pain that would usually have me screaming in pain.
Now it is not as frequent, but still there to make my day miserable...just the fun of getting older...beats the dirt nap, on the other hand.
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Post by Deleted on Mar 6, 2019 14:42:34 GMT -5
I had the same thing, but numbness instead of pain. I had surgery to relocate to ulnar nerve, but my pinky and half my ring finger are still numb years later. But it hasn't gotten any worse. Maybe just a little better. In my nerve conduction test yesterday the tech kept going back to my left arm and retesting it and my right arm. I had to explain to him why he was getting such bad readings. My Dr said the pain will stop but there is a chance..a good chance that the numbness will never go away... I am still numb but I am quickly getting the strength back in my hand. Luckily my feeling came back in my left leg below the knee. I'm real cautious of making sure I don't do anything to aggravate the nerve. |
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