bouwser
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Post by bouwser on Jul 23, 2019 19:45:16 GMT -5
Sending thoughts and prayers.
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Post by roadsdiverged on Jul 23, 2019 19:51:54 GMT -5
Late to this, but positive thoughts, best wishes and many prayers sent your way.
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Post by kbareit on Jul 24, 2019 5:05:05 GMT -5
Well, they are home from the hospital now. Son went back to work, but I am not sure how he is able to do anything while worrying about his boy. The doctors identified a leaky heart valve and enlarged aorta in my grandson's heart. Not sure where things go from this point forward. We were not there when they got the diagnosis and were released. My son was never diagnosed with anything like this and we are now wondering if he has undiscovered heart anomalies too. Going to push for him to get a full cardio workup as soon as he can. I have an aunt who passed away in her fifties that had an enlarged heart and a pacemaker a first cousin has the same thing, both on my Dad's side. Dad and I have never had any issues detected, but who knows what can be missed. Both of us have high blood pressure. Thanks for the kind words and thoughts, all. Sorry to hear your grandson having health problems. I was diagnosed having a dilated aortic root and mitral valve prolapse. They do a scan on me every year and the best they can tell I was born with this and didn't know it. My dads cardiologist suggested I get checked because of my dads issues and it was hereditary, he had the valve issue but not the dilated aortic root. I'm 53 and have had no issues with it so far and I hope the little guy has no issues with it going forward. |
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Post by Deleted on Jul 24, 2019 5:13:24 GMT -5
 Don I hope you don’t think I’m making light of his condition, thought about it and I sure you know or hope you know I take this very serious, I didn't think that at all, Brad. Your story brought me a smile and I sure needed one. I appreciate your concern and kind thoughts. |
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Post by Deleted on Jul 24, 2019 7:37:05 GMT -5
Been following along young children have the ability to heal much faster than older folks. Wishing the best outcome for him.
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Post by Deleted on Aug 5, 2019 18:51:23 GMT -5
Diagnosis today from the cardiologist. Our grandson has a bicuspid aortic valve with aortic root ectasia. Both parents will now get tested and if my son also has this, then my wife and I will need to get checked. Was reading that 2% of the population may have this defect. My mother has a leaky valve, so maybe it is my side of the family. At least we have a direction to head in now.
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Post by pepesdad1 on Aug 5, 2019 18:54:36 GMT -5
Prayers for all of you...get this checked as soon as you can.
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Post by Deleted on Aug 5, 2019 19:16:56 GMT -5
Thanks, Walt. We have echocardiograms in our future, it would seem.
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Post by Ronv69 on Aug 5, 2019 23:47:01 GMT -5
Diagnosis today from the cardiologist. Our grandson has a bicuspid aortic valve with aortic root ectasia. Both parents will now get tested and if my son also has this, then my wife and I will need to get checked. Was reading that 2% of the population may have this defect. My mother has a leaky valve, so maybe it is my side of the family. At least we have a direction to head in now. Still praying for your grandson. It sounds like what my mom had. Cancer killed her at 87. She was very active and played baseball into her 40s. |
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Post by Legend Lover on Aug 6, 2019 6:52:17 GMT -5
I only just saw this thread. I must have missed it when on holiday. It must have been a difficult and worrying time for you all. The stress of the unknown is crazy too. Is there anything that can be done to fix this, don? |
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Post by Deleted on Aug 6, 2019 13:11:28 GMT -5
I only just saw this thread. I must have missed it when on holiday. It must have been a difficult and worrying time for you all. The stress of the unknown is crazy too. Is there anything that can be done to fix this, don ? They have not made any recommendations yet. Other than having the parents tested and monitoring my grandson closely. He will require regular monitoring from a cardiologist and will probably require surgery one day to replace the valve. That becomes more likely as you age. Sounds like valve replacement as an adult is often a necessity, which also means blood thinners for life at that point. At least we know and can also get the rest of us checked for it. |
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Post by sperrytops on Aug 6, 2019 13:23:41 GMT -5
Well, they are home from the hospital now. Son went back to work, but I am not sure how he is able to do anything while worrying about his boy. The doctors identified a leaky heart valve and enlarged aorta in my grandson's heart. Not sure where things go from this point forward. We were not there when they got the diagnosis and were released. My son was never diagnosed with anything like this and we are now wondering if he has undiscovered heart anomalies too. Going to push for him to get a full cardio workup as soon as he can. I have an aunt who passed away in her fifties that had an enlarged heart and a pacemaker a first cousin has the same thing, both on my Dad's side. Dad and I have never had any issues detected, but who knows what can be missed. Both of us have high blood pressure. Thanks for the kind words and thoughts, all. Prayers for your son and grandson, Don. |
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Post by Deleted on Aug 6, 2019 13:28:11 GMT -5
Thanks Ron, Perry and Paddy.
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Post by roadsdiverged on Aug 6, 2019 13:42:25 GMT -5
Still sending prayers, well wishes and positive thoughts to you and your family
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Post by oldcajun123 on Aug 6, 2019 15:47:55 GMT -5
Don, not a day goes by that I don’t think about your grandson, can’t help any that’s the pits, so helpless , the parents and you must never have a calming moment. I really hope you do.
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stone
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Post by stone on Aug 6, 2019 15:51:55 GMT -5
Prayers for your grandson Don!
I recently lost a newborn grandson and I thank God we have a strong family. Keep them close and "show" them how much you love them!
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Post by trailboss on Aug 6, 2019 16:33:46 GMT -5
I only just saw this thread. I must have missed it when on holiday.? Same here, Don. Sorry to hear that the little tyke is having difficulty, knowing what you are dealing with helps. We will pray for him. |
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Post by Legend Lover on Aug 6, 2019 17:07:55 GMT -5
I'm touched by the kindness and concern that this place has for it's members and their loved-ones.
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Post by Deleted on Aug 6, 2019 17:10:25 GMT -5
I'm touched by the kindness and concern that this place has for it's members and their loved-ones. Me too. But not surprised. |
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Post by Deleted on Aug 6, 2019 17:13:16 GMT -5
Don, not a day goes by that I don’t think about your grandson, can’t help any that’s the pits, so helpless , the parents and you must never have a calming moment. I really hope you do. Thanks, Brad. I think it is really stressful for my son and his wife. Their hearts probably skip a beat every time he hiccups. It is good to know that it is fairly common and understood. Cardiologists are amazingly well educated and talented people. I thank God for how far medicine has come in this area. |
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Post by pepesdad1 on Aug 6, 2019 17:16:17 GMT -5
continued prayers.
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Post by Wolfman on Aug 6, 2019 17:36:02 GMT -5
Sending more prayers.
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Post by Deleted on Aug 29, 2019 16:00:13 GMT -5
Here is our little grandson at two months. He has more than doubled his weight! Healthy in all respects except for some issues with digestion and the heart valve defect. He is well loved and gets all the attention in our family right now. He is going to be a big guy. His hands make me think of Bill Jordan. They look big and strong. We have a family vacation in a few weeks and I will get a lot more time with him. Thanks for all your thoughts, comments and prayers.  |
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Post by Ronv69 on Aug 29, 2019 17:01:02 GMT -5
👍👍
Looks like the makings of a pro wrestler to me! 🥴
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Post by Deleted on Aug 29, 2019 17:19:21 GMT -5
HE is a cute little guy everything will work out just fine in the future.
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Post by oldcajun123 on Aug 29, 2019 17:43:45 GMT -5
Big boy, good looking too, they smell so good don’t they.
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Post by Deleted on Aug 29, 2019 18:09:51 GMT -5
Thanks Sean. Thanks Brad. Babies are a lot of fun. And a lot of work! Mom has it the toughest, then Dad, Grandma and Grandpa. In that order.
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Post by trailboss on Aug 30, 2019 9:43:39 GMT -5
👍👍 Looks like the makings of a pro wrestler to me! 🥴 Same thing I thought, tough looking tyke! ♥️ |
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Post by Legend Lover on Aug 30, 2019 10:31:26 GMT -5
Great photo, Don. You must be so proud.
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Post by Deleted on Aug 30, 2019 10:51:26 GMT -5
Great photo, Don. You must be so proud. I am Paddy! Just found out this morning that our niece is now expecting her first. We are her Godparents, so that is exciting news as well. |
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Don I hope you don’t think I’m making light of his condition, thought about it and I sure you know or hope you know I take this very serious, 
